Breathless
Newton, Ma 072308 Six-year-old Jessica Leahey, who uses a battery- operated respirator hooked through a tracheotomy, shows off her a ballet move she'd recently learned while at summer camp at the Day Middle School in Newton. She suffers from a rare congenital disease known as Moebius a.k.a. the mask disease because those who suffer from this condition lack control of their facial muscles so they seem to be wearing a perpetual mask. (Photo Essdras M Suarez/Boston Globe ©)
Essdras M Suarez

Print Only: P.O.A.
Framed Print: P.O.A.
Frame Size: 1170x870 mm
Frame Colour: Black

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Breathless
Newton, Ma 072308 Six-year-old Jessica Leahey, who uses a battery- operated respirator hooked through a tracheotomy, shows off her a ballet move she'd recently learned while at summer camp at the Day Middle School in Newton. She suffers from a rare congenital disease known as Moebius a.k.a. the mask disease because those who suffer from this condition lack control of their facial muscles so they seem to be wearing a perpetual mask. (Photo Essdras M Suarez/Boston Globe ©)
ضيق تنفس
نيوتن، ماساتشوستس، 23 تموز/يوليو 2008: الطفلة جيسيكا ليهي- البالغة من العمر 6 سنوات، والتي تستخدم منفسة تعمل بالبطارية داخل قصبتها الهوائية- تستعرض حركات الباليه التي تعلمتها مؤخراً في مخيم صيفي لمدرسة ’داي‘ الإعدادية في مدينة نيوتن؛ حيث تعاني ليهي من مرض خلقي نادر يدعى بـ"مويبيوس"، أو "مرض القناع/ مرض العصب السابع"، والذي يُفقد المرء السيطرة على عضلات وجهه ليبدو المريض وكأنه يرتدي قناع.
©إسدراس إم سواريز
Boston Globe ©

Photographer:
Essdras M Suarez

Print Only: P.O.A.
Framed Print: P.O.A.
Frame Size: 1170x870 mm